About the Project

The ‘Decision Making About Care for Older People Living with Kidney Failure’ project is about helping people living with kidney disease.

You can learn more about the project by watching a video, looking at our Easy Read document or reading more below.

This project (ID 28357) was approved by the University of Tasmania Ethics Committee in March 2023.

Watch

Watch project team member talk about the project.

Download

Easy Read

Read our accessible project summary.

DOwnload easy read

Cover of a booklet titled 'Care for older people living with kidney failure'. Features an illustration of a healthcare worker talking to an older patient, with a kidney diagram in a speech bubble. Logos of Royal Hobart Hospital Research Foundation, University of Tasmania Menzies Institute, and Chronic Kidney Disease Tasmania are at the bottom.

Read project information

We wanted to know if new Tasmanian data could help people make informed treatment choices for kidney failure. To do this, we worked closely with patients, carers, and health professionals.

The project involved three main stages:

Data Collection: We ran four focus groups in Tasmania with patients, carers, and health professionals. Together, we explored what information matters most when making decisions about treatment and care for kidney failure.
Codesign Workshops: We held two codesign workshops in Tasmania to share findings from the focus groups. Participants helped us identify the best ways to present new information about treatment options.
Development and Testing of Resources: Finally, we worked with patients, carers and health professionals to create some resources. People told us that these resources are useful for people making a choice about treatment.

This website presents these resources.

These resources may be useful if you are a patient, carer, family member or health professional. The resources might help patients to think about how their life might look on dialysis or supportive care treatment. They might help them to think about what is important and how treatment might best fit into their life.